“This is heartbreaking,” wrote Kenyan autistic activist Karen Muriuki as PAABA officials began blocking autistic people from commenting on their standard of ethics during the launch of the organisation online. “Why silence autistic Africans who are advocating for disability and human rights? This a total violation of CRPD Articles 7, 15 and 16.”
“The autistic community… must be involved at the highest levels… We cannot be kept busy with token consultations while the real decisions are made elsewhere.”
Most people with hearing loss don’t understand Sign Language. Along with them, many autists also benefit from captioning. The NCPD is taking ICASA (South Africa’s broadcasting regulator) to the High Court over its failure to provide a fair Code on captioning.
This letter followed a meeting between Tania Melnyczuk and academics who are developing an autism awareness programme. It provides an example of how ABA promotors violate the United Nations Convention on the Rights of People with Disabilities (CRPD) and mentions the international #BanABA movement.
Resources for a meeting with academics on autism awareness and training.
Some schools in the Western Cape are allegedly coercing parents into drugging their disabled children.
The UK’s largest autism research project doesn’t align to the UN Convention on the Rights of People with Disabilities.
This article is based on an August 2021 interview by Margaret Waweru-Kihara of Netplus with Nairobi-based autistic activist Karen Muriuki.
ABA is a behaviour modification method for the ‘treatment’ of autism. It is used particularly with autistic children who struggle with communication and self-regulation. ABA is touted as being ‘evidence-based’, in spite of there being little evidence of support from the community ABA purports to serve. This article, written for a South African audience, includes perspectives of several non-speaking autistics on their ABA experiences.